Convened by: Michele Garfinkel (DE)
Location: 9-11 December 2014, Heidelberg, Germany
DNA sequencing; research policy; rights and duties; basic research; clinical research
The acquisition of human DNA sequences is technically nearly trivial. A major obstacle to the use of these data to improving human health is the limited amount of available additional data (metadata). Most research protocols have allowed donors to remain anonymous, or to limit access to the metadata. This workshop will focus on the use of non-anonymous genetic data in basic and medical research. The interdisciplinary group will evaluate the current situation and explore scientific and policy options for the distribution of metadata along with the genetic data, and possible consequences. The aim is to explore concrete and novel solutions.
(for information purposes only - this meeting is not open to the public)